Advocacy Organizations & Support

Asthma and Allergy Foundation of America

AAFA

The leading national organization dedicated to improving the lives of people with asthma and allergic diseases through education, advocacy, and research.

Allergy & Asthma Network

AAN

A leading nonprofit patient education and advocacy organization dedicated to ending the needless death and suffering due to asthma, allergies, and related conditions.

American Academy of Allergy, Asthma & Immunology

AAAAI

Professional medical organization of allergists, asthma specialists, and immunologists advancing research, treatment, and public policy for allergic diseases.

American College of Allergy, Asthma & Immunology

ACAAI

Professional association of allergists and immunologists providing education, research support, and advocacy for patients with allergies, asthma, and immune disorders.

Asthma & Allergy Institute/Resources (AAIR)

AAIR

For over 40 years, AAIR has worked to keep children rescued at school, healthy at home, and connected to care — expanding nationwide with school asthma emergency (RESCUE) programs, prescription assistance, and free newly-diagnosed kits.

American Lung Association

ALA

The nation’s oldest voluntary health organization dedicated to lung health, leading asthma education, research, and public policy — including asthma action plans, smoke-free air laws, and access to inhalers and clean air for people living with asthma and COPD.

Christopher D. Redding Youth Asthma Foundation

CDRYAF

501(c)(3) founded in 2013 by Helen and Michael Redding, Sr. in memory of their son Christopher, a student athlete who died of exercise-induced asthma exacerbation in 2003. Educates, advocates, and provides services for families and youth with asthma — with a focus on lessening adverse health effects on asthmatic youth and young adults in athletics within underserved communities.

Allergy UK

AUK

The leading national charity for people living with allergy in the United Kingdom, providing evidence-based information, a helpline, and patient support across all allergy types. Its food allergy hub covers symptoms, diagnosis, management, and living with food allergy — a key UK patient resource referenced alongside Owen’s Law and FSA guidance.

Global Allergy & Airways Patient Platform

GAAPP

Global umbrella organization empowering patients with allergies, airways, and atopic diseases around the world. GAAPP raises standards for access to treatment, diagnosis, and care, and supports a network of over 100 member organizations across all continents through advocacy, education, and awareness campaigns.

Food Allergy Research & Education

FARE

The world’s largest private funder of food allergy research, advocating for the 33 million Americans with life-threatening food allergies through education, policy, and innovation.

Elijah-Alavi Foundation

EAF

Advocacy nonprofit dedicated to protecting children with food allergies in schools and childcare through Elijah’s Law legislation and education.

Allergy Advocates New York

AANY

New York–based nonprofit advocating for the food allergy and anaphylaxis community through education, awareness, and policy. Runs the Epi Near You New York program to surround the state with non-patient-specific epinephrine and training, and publishes the "Allergy Awareness — Navigating a New Normal" guidebook for newly diagnosed families, schools, and policymakers.

Allison Rose Foundation

ARF

Nonprofit founded in 2018 in memory of Allison Rose Suhy, dedicated to changing the lives of food allergy families through physician-driven education, awareness, research, and advocacy — including no-cost school and university training, stock epinephrine access, and the Allison Rose Act legislation.

Kids With Food Allergies

KFA

A division of AAFA providing education, support, and community for families managing children’s food allergies with evidence-based resources.

Center for Food Allergy & Asthma Research

CFAAR

Research center at Northwestern University Feinberg School of Medicine and Lurie Children’s Hospital studying the prevalence, impact, and policy of food allergy and asthma to find answers and shape public health policy.

Natalie Giorgi Sunshine Foundation

NGSF

Established in memory of Natalie Giorgi, a 13-year-old who died from anaphylaxis after accidentally eating a peanut-containing dessert at a camp celebration. The foundation works to reduce food-allergy fatalities through public awareness, education, and stronger safety policies, and inspired California AB 1532, the Natalie Giorgi Sunshine Act, requiring food-handler certification in safe food-handling practices for allergens.

No Nut Traveler

NNT

Grassroots nonprofit using organizing, advocacy, and education to improve the safety and quality of life of individuals with food allergies both in the air and on the ground — a leading voice for fair food allergy policies on commercial airlines and travel.

The Kyah Rayne Foundation

KRF

Founded in 2019 by Lisa Cohen in memory of her daughter Kyah Rayne, who passed away at 21 from anaphylactic shock after accidentally eating a peanut. The foundation advances food-allergy awareness and education and champions broader access to epinephrine auto-injectors (EAIs) so families can respond quickly when every second counts.

ReeseStrong, Inc.

RS

Nonprofit created to help children and their families fight food allergies through community awareness, education, and advocacy — easing the financial burden of epinephrine and building a safe, knowledgeable space for food-allergy families.

Owen's Law Campaign

OWENS

UK-based campaign founded by the family of Owen Carey, an 18-year-old who died from anaphylaxis in 2017 after a restaurant server assured him a chicken burger was plain-grilled when it had been marinated in buttermilk. The campaign fights for stronger allergy labelling and staff training laws in restaurants to prevent future needless deaths of food-allergy diners.

Food Allergy Collaborative

FAC

Launched in 2019, an alliance of advocacy organizations, people living with food allergies, and industry partners uniting to advance effective, patient-centered initiatives in food allergy awareness, research, and care — including the FDA-reviewed Voice of the Patient report and efforts to expand epinephrine access.

Academy of Food Allergy Counseling

AFAC

Organization dedicated to supporting the food allergy community’s psychosocial needs by bridging and filling food allergy mental health support gaps — offering a therapist directory, professional clinician training, and evidence-based emotional wellness resources. Supported by the nonprofit The Teal Schoolhouse.

Food Allergy Science Initiative

FASI

A discovery engine advancing a new field of cross-disciplinary food allergy research — bringing together world-renowned scientific experts from the Broad Institute of MIT and Harvard, Yale, Rockefeller University, and the Icahn School of Medicine to transform how food allergies are diagnosed, treated, and prevented, with the goal of a cure.

Food Allergy Fund

FAF

The leading nonprofit funding breakthrough research to prevent, treat, and cure food allergies — shortening the path from discovery to impact, convening federal leaders (HHS, NIH, FDA, ARPA-H, NIAID) through its Leadership Forum, and partnering on public-awareness campaigns with Nickelodeon. 100% of public donations go directly to food allergy research.

Anaphylaxis Initiative

AI

National initiative focused on epinephrine access, emergency preparedness, and anaphylaxis awareness in schools, restaurants, and public spaces.

EpiPen4Schools

E4S

Program providing free epinephrine auto-injectors to U.S. schools to ensure emergency anaphylaxis treatment is available for students and staff.

Code Ana

Code Ana

A school-focused nonprofit program helping schools build and implement step-by-step medical emergency response plans. Through its Med-E Ready program and Epinephrine Certification course, Code Ana trains school staff to take effective, prepared action during anaphylaxis and other medical emergencies.

Celiac Disease Foundation

CDF

National organization driving diagnosis, treatment, and a cure for celiac disease through research funding, advocacy, and patient support.

Beyond Celiac

BC

Patient advocacy organization accelerating research and improving quality of life for the celiac disease community through education and policy engagement.

American Partnership for Eosinophilic Disorders

APFED

Patient advocacy organization dedicated to improving the lives of those with eosinophilic disorders including EoE through research, education, and support.

Campaign Urging Research for Eosinophilic Disease

CURED

Foundation funding research and raising awareness for eosinophilic gastrointestinal diseases, driving toward better treatments and a cure.

The FPIES Foundation

FPIES Fdn

Global nonprofit providing education, support, and research advocacy for families and individuals affected by Food Protein-Induced Enterocolitis Syndrome.

Alpha-gal Alliance

AGA

Advocacy organization dedicated to raising awareness of alpha-gal syndrome, supporting patients, and driving research and policy on tick-borne meat allergy.

Alpha-gal Information

AGI

An Alpha-gal Alliance project serving as a comprehensive educational hub on alpha-gal syndrome — the tick-induced mammalian meat allergy. Covers symptoms, diagnosis, research, and advocacy for the Alpha-gal Allergen Inclusion Act.

Alpha-gal Foundation

AGF

A people-centered nonprofit engaging, educating, and empowering the alpha-gal community — supporting patients, families, and healthcare providers navigating life with alpha-gal syndrome.

The Mast Cell Disease Society

TMS

Patient-driven nonprofit advancing research, education, and advocacy for mast cell diseases including mastocytosis and MCAS.

National Eczema Association

NEA

Patient advocacy organization improving the lives of people with eczema through research funding, education, and policy engagement.

Food Equality Initiative

FEI

Nonprofit addressing food allergy and food insecurity inequities in underserved communities by providing access to safe, healthy, allergen-friendly food and advocating for equitable food-allergy policy.

Wholesome Wave

WW

National nonprofit making fruits and vegetables affordable and accessible through produce prescription programs and "Food as Medicine" initiatives that connect healthcare with nutrition for families facing food insecurity.

The Food Trust

TFT

Nonprofit working to ensure everyone has access to affordable, nutritious food through healthy food financing, farmer’s markets, and corner-store initiatives in underserved neighborhoods.

WhyHunger

WH

Grassroots organization building the movement to end hunger and poverty by connecting people to nutritious food and community-led food-justice solutions while addressing root causes of food insecurity.

No Kid Hungry (Share Our Strength)

NKH

National campaign ending childhood hunger in America by connecting kids to healthy food through school breakfast, summer meals, and SNAP access, with a focus on equity and food diversity for families in need.

FOODiversity

FD

North Carolina–based 501(c)(3) nonprofit founded in 2020 that lessens the burden of food insecurity for individuals with food allergy, celiac disease, and food intolerances — preventing hunger and medical emergencies through awareness, education, financial support, and increased access to allergy-safe food, including partnerships with food banks.

Center for Health Law & Policy Innovation

CHLPI

Harvard Law School clinic advancing food access and health equity through law and policy — including the Food is Medicine initiative, SNAP and Medicaid nutrition policy, and legal advocacy for vulnerable communities.